The Last of the Bone Marrow Bucket List
I’ve been able to do a lot of things since my SCT was delayed. Now the life of my bone marrow is winding down and the bone marrow bucket list is shorter as well. Tomorrow (Thursday) is my last day of freedom before being admitted. At the end of this post are some pictures from the last few days of my Bone Marrow Bucket List and below are some pretty good “I love ice cream” photos.
It Won’t Be Long Now
Yesterday I found out the plan for my admission this Friday. I will report to first floor admissions at 7:30 am. After I check in, I’ll go to Interventional Radiology to get my central line placed. This is where I get some good drugs to keep me sedated while they place the line. After that is over, I’ll be taken to the Bone Marrow Transplant unit, which will be my home for around 4 weeks. I’ll be given chemo at some point on Friday and then I’ll start radiation on Monday.
Wake Me Up When It’s Over
I’m not one to wish I could fast forward through life, but I wouldn’t mind a skip the next 28 days button. The SCT is most definitely necessary, but also most definitely not enjoyable. My biggest concern going into this is mouth sores. I was lucky enough to only have to deal with them once before, and even then it was a mild case. Some viscous lidocaine and regular doses of Dilaudid kept the pain at bay so I could eat soft foods. However there’s a good chance the one two punch of chemo and radiation this time around will cause severe mouth sores. Like I can’t eat so I get a feeding tube down my nose kind of mouth sores. These are pretty typical during stem cell transplant and I’m not looking forward to them. I’m sure plenty of drugs are available to help with the pain, and obviously they can keep me nourished with a feeding tube or TPN. But all things being equal I’d like to be blessed with minimal mouth sores.
- Good: I get to enjoy some fall weather. Being admitted on 9/22 and out of commission for a few months means I would have missed being outdoors and seeing all the beautiful fall colors. There aren’t to many colors yet, but it’s been good to enjoy some fall weather while I’ve waited for the new date.
- Bad: I’m going to be in the hospital for Halloween. It wasn’t guaranteed that I would have been out of the hospital for the earlier admission, but I definitely won’t be out now. That means I’ll miss getting to see the kids in their costumes as they trick or treat in the neighborhood. There are only so many years that the kids will love to dress up and let mom and dad go with them. I’m really bummed that I’m missing one of those years.
- Good: I mentioned a while back that the BMT Unit has smaller TVs. The good news is they were ordering bigger TVs. Now I don’t know if they’ve been installed yet, but I’d like to think that Kelly is hanging a TV in my room as we speak. Perhaps she has also strung some streamers and decorated the walls too 🙂
- Bad: I know I will have medical expenses in 2016, but I was hoping to get the major ones out of the way in 2015. It’s likely that the delay won’t have too big of an impact, but it’s also possible I could have an admission or some treatments in early 2016 that would have taken place in 2015 if things hadn’t been delayed.
- Good: You have to go to the dentist before an SCT and it had been a year since I had been to mine. They found a very small cavity and got it filled. If I wasn’t having an SCT, who knows how long I would have waited to go and how big that cavity might have become.
Have you ever had a garden that you’ve painstakingly cared for? Or perhaps some flowers that you planted, watered and fertilized. Then one day a rabbit or some deer come along and destroy all your hard work? That’s kinda how I feel about my hair and my beard. For the last few weeks I finally had some good hair and a good beard going. I don’t exactly style it every morning, but I do keep it trimmed and looking good. Now the chemo is going to come and destroy my hair, just like a rabbit eats up your lovely garden. I know the hair will come back, and I do laugh a bit when I wash my hair and see it all coming out into my hands; but losing hair seems to be a big deal to a lot of cancer patients. On the plus side though my nose hair will fall out and I won’t have to trim it for awhile, so I got that going for me.
Should I Commit a Crime?
In a little over a week, I’ll have new bone marrow and new DNA in my blood. That kind of begs the question on whether or not I should commit a crime and leave some blood evidence behind. By the time they catch up to me, I’ll have new blood and they won’t be able to link me to the crime scene. Although I guess on the downside if my donor commits a crime I could be linked to the blood evidence there. This one seems to be a glass half empty or half full situation depending on how you look at it.
A Duck Dynasty Prayer
God, keep me sane through all of this. Through all the ups and downs, be my constant. I thank you for calm nerves and a willing attitude. Help me to enjoy my last day before admission and then many more days after that. Thank you for another day.