Screw Anthem, I’m Getting Admitted

IMG_4433
Spending some time with my little buddy before admission.

Simon Says “Come Here”
As far as I know, there were no breakthroughs with Anthem (come on people, I gave you ONE thing to do).  However, Dr. Cripe said I can be admitted to Simon Cancer Center tomorrow and we’ll just work out the home care stuff during my 10 day stay.  So tomorrow at 8:30 am, I’ll be checking into to clinic to get admitted.

How This Will All Go Down
Once I show up in clinic, I’ll have labs drawn and will see Dr. Cripe.  I’ll then get a PICC line in my right arm.  After getting the PICC, I’ll go to radiology to have a chest x-ray done (or is it xray?  The orders catalog is so confusing).  The X ray is taken to confirm the PICC line is in the right spot.  After confirming the placement of the PICC, I’ll go to the 3 East to get settled into my room.  And if Katie Sargent is doing her job, I’ll have a room in either A pod or B pod.  At some point, we’ll start the Blinatumomab.  I’m not sure when, but I imagine it will be early afternoon.  Once it’s started, I’m not sure how long it will be until I feel side effects.  I’ll eat a light lunch just in case.

My PICC line from June. Note the 2 dangly things (lumens).
My PICC line from June. Note the 2 dangly things (lumens).

Why a PICC and Not a Port?
I miss my port.  Ports were so easy.  However the port I had only had one point of access.  The PICC I receive is a double lumen, meaning the tubing has 2 separate channels for meds and fluids to be given.  Because I’ll constantly be receiving Blinatumomab, I need the 2nd channel for fluids, other meds and potentially blood products.  The PICC will stay in for both cycles, assuming there are no complications.

Life Locked Up
I’ll be on 3 East for 10 days.  No access to the outside.  No Passouts.  It’s quite possible that I’ll feel ok or at least ok enough to walk around the unit some (my form of exercise while being treated).  It’s also possible I’ll feel crappy and won’t get out of bed much.  Aside from remission, I have one key goal for this treatment.  No urinary catheters.  Those things hurt like a son of a gun.  So above all else, no matter how bad I feel, I need to be able to get up and go pee.  Or at least have the energy to dangle over the side of the bed and aim for a bucket.

A Duck Dynasty Prayer
Father God, thank you that I have treatment options.  Thank you for the people organizing my care and cutting through all the red tape.  Thank your for the support that we receive and the encouragement that I am sent.  Help me to make it through this treatment.  Be with Lindsey and the kids while I am away.  Help the kids to understand why daddy has to go back to the hospital.  Thank you for all the hands that will help during this cycle and the next.  Please be with me and others on 3 East.  I thank you for your providence.  I thank you for another day.

20 thoughts on “Screw Anthem, I’m Getting Admitted

  1. Love keeping up on you – prayers continue, and your attutude is AMAZING and DOES make a difference! You got this buddy…. keep the faith…..

    Liked by 3 people

  2. So thankful you can start the blinatumomab tomorrow- a big step in the right direction. I’ll pray for all the details to work out with insurance etc. Meanwhile, you just keep up the fight and know everyone who loves you (and that’s a lot of us) is praying for you, Lindsey and the kids and for you to be in remission soon. 💜

    Liked by 3 people

  3. Sounds like a solid plan. I can ‘hear’ the determination in your words. Praying for the insurance to be resolved, for a one-stick PICC, for the home to run smoothly while you can’t be there, for the side effects to be manageable, and for the strength to ‘dangle’ to avoid a foley. God bless, Mr. Culross!

    Liked by 3 people

  4. I think you believe that you have a lot of options. I think you are wise to think this way, especially because it’s true. Whether it works or not, SCT is not the end of the road. It is simply the first in your long list of available options. Many of these options can be a benefit when applied alone, or can help other options. One especially potent option is described by Jesus in Mark 16:17-18.
    .
    17: “And these signs will accompany those who believe: in my name …
    18: … they will lay their hands on the sick, and they will recover.”
    .
    Note the key difference between these verses and the typical prayer you receive from friends and family. The latter often proceeds out of belief, and may often invoke the Name of Jesus. But how many people have laid hands on you while praying in this way? Jesus would not have mentioned the laying of hands unless it was a critical feature. Prayer done in this way is very powerful precisely because it is more public, and therefore takes more faith, both from the pray-er, and from you.
    .
    So, teach your children to pray this way, because their prayer out of innocence may be the most powerful. Teach your wife to pray this way. Ask especially faith-filled friends to pray this way. Consider asking a nurse or some other member of your care team to pray this way.
    .
    And don’t say “if it is Your will”. You are not praying to know God’s will. You have already accepted that, whatever it is. You are praying to say “Jesus, I know You can do this. Whether You do it or not matters not, because You are the same God whether You do it or not. I’m praying to tell You that I believe that nothing is too wonderful for You.” It is a more a prayer of praise than of petition.
    .
    Love, Uncle Claude

    Liked by 1 person

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