Simon Says “Come Here”
As far as I know, there were no breakthroughs with Anthem (come on people, I gave you ONE thing to do). However, Dr. Cripe said I can be admitted to Simon Cancer Center tomorrow and we’ll just work out the home care stuff during my 10 day stay. So tomorrow at 8:30 am, I’ll be checking into to clinic to get admitted.
How This Will All Go Down
Once I show up in clinic, I’ll have labs drawn and will see Dr. Cripe. I’ll then get a PICC line in my right arm. After getting the PICC, I’ll go to radiology to have a chest x-ray done (or is it xray? The orders catalog is so confusing). The X ray is taken to confirm the PICC line is in the right spot. After confirming the placement of the PICC, I’ll go to the 3 East to get settled into my room. And if Katie Sargent is doing her job, I’ll have a room in either A pod or B pod. At some point, we’ll start the Blinatumomab. I’m not sure when, but I imagine it will be early afternoon. Once it’s started, I’m not sure how long it will be until I feel side effects. I’ll eat a light lunch just in case.
Why a PICC and Not a Port?
I miss my port. Ports were so easy. However the port I had only had one point of access. The PICC I receive is a double lumen, meaning the tubing has 2 separate channels for meds and fluids to be given. Because I’ll constantly be receiving Blinatumomab, I need the 2nd channel for fluids, other meds and potentially blood products. The PICC will stay in for both cycles, assuming there are no complications.
Life Locked Up
I’ll be on 3 East for 10 days. No access to the outside. No Passouts. It’s quite possible that I’ll feel ok or at least ok enough to walk around the unit some (my form of exercise while being treated). It’s also possible I’ll feel crappy and won’t get out of bed much. Aside from remission, I have one key goal for this treatment. No urinary catheters. Those things hurt like a son of a gun. So above all else, no matter how bad I feel, I need to be able to get up and go pee. Or at least have the energy to dangle over the side of the bed and aim for a bucket.
A Duck Dynasty Prayer
Father God, thank you that I have treatment options. Thank you for the people organizing my care and cutting through all the red tape. Thank your for the support that we receive and the encouragement that I am sent. Help me to make it through this treatment. Be with Lindsey and the kids while I am away. Help the kids to understand why daddy has to go back to the hospital. Thank you for all the hands that will help during this cycle and the next. Please be with me and others on 3 East. I thank you for your providence. I thank you for another day.