Home Sweet Home

I’m On Parole IMG_0975
My discharge on Saturday was pretty uneventful.  I had a fever Friday night, but that broke on its own and I was good to go on Saturday morning.  Today is day 11 of Blinatumomab.  I’ll continue to get Blinatumomab for 17 more days and then I’ll have 2 weeks off.  The goal is to not get my parole revoked and have to go back to the hospital.  I’m not sure I can do too much to control that, but I’ll try.  After the 2 week break is up, I’ll start Blinatumomab for 28 more days.  We’ll check for remission before I start my 2nd cycle, and if I’m in remission we’ll start the ball rolling on the SCT.

Home Care
Home care will be at our house every other day.  They’ll change out my bag of Blinatumomab and draw labs.  They’ll also take vitals and do a general checkup.  We received a box full of home care supplies that Lindsey has organized in 3 plastic drawers.  We also keep the bags of Blinatumomab at home.  They’ll ship us 3 bags at a time, which we keep refrigerated.  One hour before home care comes (9 am), we’ll take a bag out of the refrigerator, so it’s not to cold when they hook me up.

And the Powerball Numbers Are:
My next lab draw will be tomorrow when home care comes.  I’ll then have draws every other day.  My Friday counts were up because of the steroids I received Thursday.  Saturday’s numbers came down a bit, but the WBC and Platelets are still trending up.

7/24: WBC 2.3, Hemoglobin 8.4, Platelets 89
7/25: WBC 1.3, Hemoglobin 7.2, Platelets 76

A Duck Dynasty Prayer
Thank you God for life at home.  Thank you for little hugs and little kisses.  Thank you for the cuddles I received today.  Help me to be patient with my treatment and take one day at a time.  Thank you for another day.

12 thoughts on “Home Sweet Home

  1. Our house sure seems quiet now that Camp UMAC has concluded and our campers are back home:-). It sure was a joy to have your kids here and our kids are already talking about what we can do next summer. Maybe you and Lindsey can plan a date night or an evening away next summer during their time here in 2016. It seems far off now but how wonderful it will be to look back and know these hard days are behind us.
    It sure was great to give you a hug today and see the excitement in the kids’ faces when they saw their Daddy at home awaiting their arrival. We are praying with all our hearts for your remission. Love you all so much and Mark and I and the kids are thankful for our time with you and Lindsey today. 💙

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  2. Blessings to you dear Rob that you are home with Lindsey and our “sweetie-pies”! I can just picture the beautiful smiles present in your life every day, and we are smiling with you. Thank you prayers for home health care! Thank you prayers that you are doing well on the Blinta, and thank you prayers always for your strength and God’s blessings as you raise me up each day of this journey!

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  3. Ah, the memories of having bags of triple mix and vials of Morphine hogging up space in a crisper drawer of the refrigerator……IV pumps, tubing, urinals….
    None of it bothered me. It was pure joy and an honor to care for Charles when he was sick as I know Lindsey feels about this time with you. Pure joy to just have you home.
    God was thinking about you a long time ago when he gave you a neat-freak, organized, kind, unselfish, nurse, for a wife.
    You are loved.
    Praying for you, Mr. Culross!

    Liked by 2 people

  4. Glad to hear you are settled in and I’m thankful you and Lindsey had a little break from the kiddos this weekend to reconnect and also get some things attended to. Praying for remission and symptom free days ahead.

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  5. So glad you got to go home. That environment is always better than a hospital. Curious are the chemo’s in those little “balls” with no air in them. That is what I administered Frank’s meds with when he had sepsis.

    The end of my chemotherapy was a little bittersweet for me because I sincerely hoped you were all done with your cancer but it helps me to keep my life in perspective. Of course there are no guarantees in life. Once the cancer is active in your body it can sneak out anytime. I have a good friend who’s husband had been in remission from throat cancer and unfortunately it came back with a vengeance. You hear those stories all the time. But as I have always said cancer is 95% attitude and your strength through this situation is 100% GOD.

    My prayers are with you my dear nephew and with your beautiful wife and children.

    Love to all,
    Aunt Liz

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  6. Good to hear you can be home with your family. Those hugs and sweet kisses are medicine for the soul. We continue to lift you up to the Great Physician. Peace be with you. May no fevers enter your body.

    Liked by 1 person

  7. Was thinking of you and praying on the way to work. I hope that you are managing the symptoms and the chemo as best you can. It is a very tough road but one I know that you can travel because your faith and your strength are very strong. Remember to PACE yourself i.e. positive attitude changes everything.

    Sending Hugs!
    Love you
    Aunt Liz

    Liked by 1 person

  8. Just a note to say we are praying for you, for remission, for no side effects or fever and for you to continue to enjoy being home with your family, whom I know is the best medicine 💉. It was so wonderful to see you and hug you in person Sunday😊 Mark, the kids and I are still talking about all the cute things your kids did while here, like Tucker calling the iPad the “HiPad”😉
    Love you!

    Liked by 1 person

  9. Hi Rob, this is Nanette, Nick F’s mom. I have signed up to follow your blog. They have been keeping us up-to-date on you. We are glad you are home with your beatiful kids. We are praying for you, as are all the ladies in my Bible study. Most of us are old and decrepit, but our prayers are full of the Spirit and love.😄😄😄

    Liked by 2 people

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