I’m On Parole
My discharge on Saturday was pretty uneventful. I had a fever Friday night, but that broke on its own and I was good to go on Saturday morning. Today is day 11 of Blinatumomab. I’ll continue to get Blinatumomab for 17 more days and then I’ll have 2 weeks off. The goal is to not get my parole revoked and have to go back to the hospital. I’m not sure I can do too much to control that, but I’ll try. After the 2 week break is up, I’ll start Blinatumomab for 28 more days. We’ll check for remission before I start my 2nd cycle, and if I’m in remission we’ll start the ball rolling on the SCT.
Home care will be at our house every other day. They’ll change out my bag of Blinatumomab and draw labs. They’ll also take vitals and do a general checkup. We received a box full of home care supplies that Lindsey has organized in 3 plastic drawers. We also keep the bags of Blinatumomab at home. They’ll ship us 3 bags at a time, which we keep refrigerated. One hour before home care comes (9 am), we’ll take a bag out of the refrigerator, so it’s not to cold when they hook me up.
And the Powerball Numbers Are:
My next lab draw will be tomorrow when home care comes. I’ll then have draws every other day. My Friday counts were up because of the steroids I received Thursday. Saturday’s numbers came down a bit, but the WBC and Platelets are still trending up.
7/24: WBC 2.3, Hemoglobin 8.4, Platelets 89
7/25: WBC 1.3, Hemoglobin 7.2, Platelets 76
A Duck Dynasty Prayer
Thank you God for life at home. Thank you for little hugs and little kisses. Thank you for the cuddles I received today. Help me to be patient with my treatment and take one day at a time. Thank you for another day.