Want to get your Christmas shopping done early? Would you like to avoid multiple stores? Do you need an outfit you can buy for your entire family so you match in your next family photo? Look no further! For a limited time, you can buy a #Robstrong t-shirt. My fabulous co-workers in the hc1 marketing department have designed 2 #Robstrong t-shirts. They look basically the same, but one has Romans 12:12 on the back. The ordering deadline is August 14th, however there may be a 2nd order placed. The link below will take you to the hc1 store, where you can buy a t-shirt. You can look at the descriptions to see which shirt has Romans 12:12 and which shirt doesn’t.
The shirts are $20, and all proceeds will be sent to Lindsey and I. You have a few options for shipping:
- You can pay to have the shirt shipped directly to you.
- You can enter Robstrong into the discount box on the checkout page and your t-shirt will be shipped to the hc1 office free of charge (near 96th and Zionsville on the northwest side of Indy). You would then need to pick up the t-shirt.
- You can enter Robstrong into the discount box on the checkout page and then let Lindsey or me know you ordered a shirt and what size (via email, facebook, comments on here, etc). The shirts will be shipped to hc1 free of charge and we’ll have your t-shirt brought to our house so you can pick them up from one of us.
Thank you to everyone who will buy a shirt! Now that marketing has supported the #Robstrong cause, let’s see if Product and Dev can put a #Robstrong Easter Egg into hc1 code. Just kidding Brad! (Brian and Jason, I bet you can totally pull this off. Go for it!)
Buy a t-shirt here >>>>>http://shophc1.com/collections/robstrong <<<<< Buy a t-shirt here
My Basilic Vein
My PICC line is inserted into my basilic vein. If you’re like me, before I ever had a PICC, I couldn’t tell my basillic vein from my….well, actually I don’t know the names of any other veins. But the basilic is a vein that runs through you arm. I bring this up because I’ve had 2 PICCs inserted since June. They were inserted by 2 different nurses. And both nurses complemented me on how big my basilic veins were. Now in no way is the size of one’s basilic vein related to the size of ones, um, feet. But there is something psychological about people telling you you have big veins that makes you walk out of the procedure room walking a little taller.
Do the Jitterbug
Over the last few days I’ve gotten a little jittery. It’s not too bad, but you can definitely see a tremor in my hand and sometimes my body. Tremors are a common side effect of Blinatumomab, so this isn’t unexpected. However, neurological side effects are watched a little more seriously since Blinatumomab is a neurotoxin. What starts off as tremors could escalate into more serious side effects. Actually, if the tremors get bad enough, those by themselves would be reason to stop my infusion. So here’s to small tremors that don’t turn into big ones or anything else.
Me and Larry (and Lindsey, Neda, and Stacey)
Today was a clinic day. Still have issues getting my hub rubbed, but everything else went well. Dr. Cripe continues to be pleased with my blood counts and lack of side effects. He asked about the tremors and definitely said it’s something we want to keep an eye on. Other than that, everything is status quo and we will see Dr. Cripe next week.
Some Important Dates
At the clinic visit, we also set some important dates. I will stop taking Blinatumomab on 8/13. On 8/24 I will have another Bone Marrow Aspiration. This BMA will tell us if I am in remission, or at the very least if the leukemia in my bone marrow has been greatly reduced. No matter the outcome of the BMA, I will start a 2nd cycle of Blinatumomab on 8/26. If I am in remission, we will start the SCT process and stop the Blinatumomab as soon as we are ready to admit me for the SCT. If I am not in remission, I will complete the full 2nd cycle of Blinatumomab and have another BMA. Most people achieve remission after the first cycle, so that will be a key milestone. However, all of the studies had at least 2 cycles so that’s why I will have a 2nd cycle even if I am in remission.
And the Powerball Numbers Are:
Things are heading up. Actually, we are changing how often I have CBCs. Right now I have them drawn every other day. However, since my counts are looking good, we will only draw them on Wednesdays (at least until I start cycle 2).
8/3: WBC 1.4, Hemoglobin 9.8, Platelets 177
8/5: WBC 1.7, Hemoglobin 10.6, Platelets 188
I was curious about my platelets because while I was in remission, my platelets were never this high. They started out around 160 and at the end of my remission, my platelets were consistently in the 130’s. Dr. Cripe said after my bone marrow has been supressed (either by leukemia or the treatment of leukemia) my bone marrow might overshoot the number of cells I need. before settling at a lower number. My platelets may keep going up, but most likely they will come down a bit from whatever their peak is. So we’ll see how high they get, and that is good to know so I don’t freak out if they drop a little.
A Duck Dynasty Prayer
One day at a time God. Easier said than done. I’m glad for the comfortable spot I am in. I am home. I am getting treatment. And I have limited side effects. However, I can’t live this way forever. At some point I would reach the limit of Blnatumomab. At some point the leukemia might resist the drug. At some point, I’ll go crazy sitting around the house. I thank you that I have dates when things will either move forward or move sideways. Help me to continue to see one day at a time. Help me to continue to be calm in this process. I trust you with my life and I ask in your name that my life last for many more decades to come. Thank you for another day.