So Hoist Up the John B’s Sail

The kids all dressed up for Halloween.  Syd was going to be Repunzel but had a last minute change of heart.
The kids all dressed up for Halloween. Syd was going to be Repunzel but had a last minute change of heart.

Monday Washington = Washington DC 
We all remember Algebra, right?  Solving each side of the equal sign until we could solve no more?  In the above algebraic equation, I would divide by Washington to eliminate it from each side.  This would leave us with Monday = DC and as we all know DC is short for Discharge in the healthcare world.  While not confirmed, all signs are pointing to me going home tomorrow!  We’ll talk with the docs during rounds and I’ll hopefully get the ok.  If not, I may just walk out AMA 🙂

Bloody Nose Picture
Sorry for those of you that were greeted with a bloody nose picture of me in your newsfeed.  Usually Facebook takes the first picture in my blog so I deliberately put a pretty butterfly picture in.  For some reason Facebook skipped over that and went straight to the Hanibal picture.  Oops!

Medical Update
Overall my body is doing pretty good.  I’m definitely not back to normal but I’m on the expected path.  My nose has cleared up meaning I can breath out of it.  That also means since I don’t have to breath out of my mouth it stays moist now.  I’ve never really appreciated a moist mouth as much as I do now.  The diarrhea is still around, but that is to be expected.  I’m also still nauseous at times but meds help keep that under control.  I had some leathery skin from the radiation, but that is better as well.  It quite interesting picking dead skin off yourself.  I’m totally off fluids so I’m longer hooked up to the IV pump.  Really there isn’t anything they can do for me here that I can’t do at home at this point.

Typical Sydney move.  When she says she's to tired to walk, she just drops to the ground and lays there.
Typical Sydney move. When she says she’s to tired to walk, she just drops to the ground and lays there.

Mental Update 
Mentally I’m ok, but I can tell if I stay here much longer I’m gonna lose it on someone.  This hasn’t always been the case.  As long as I feel like I need medical care, I have no issue being here.  But as mentioned above, there isn’t anything I’m receiving now that I can’t take at home.  Especially since I can’t leave the unit and have to wear a mask when I leave the room, I’m getting a bit stir crazy.  A guy can only walk the same 200 ft of hallway so many times.  In my room I can sit in my bed or in a chair, but that’s about as much variety as I can get.  Lindsey has been my lifeline to the outside world and I don’t know what I’d do without her visits.  Even when I was just sleeping during the day, it was good to know I could just open my eyes to see her.  The reason I’d be willing to walk out AMA (against medical advice) is because I need to see the kids.  Again, I’m fine being in here if I need to be, but without a need all I want to do is be at home.

Speaking of Home
I’m not exactly sure what life will be like at home.  I don’t need to wear a mask at home but I do need to wear a mask if I go out anywhere.  This is because home should contain the germs I’m used to and won’t cause me to be sick.  The curveball there of course is that we have 2 little ones who will bring home new germs 3 times a week from pre-school.  I don’t know how much I’ll be able to interact with the kids but I know I need to be careful.  Basically the rule of thumb I’ve been given is to not do anything you wouldn’t do with a new born.  Wouldn’t take a 1 week old to the store during flu season? Then Rob can’t go either.  Wouldn’t take a 1 week old to a restaurant?  Then Rob can’t go either.  The tough part is even if someone is well, they may not be able to be around me.  If they’ve been around anyone who is sick they could potentially be a carrier even if they have no symptoms.  So essentially anyone around someone else with even a sniffle shouldn’t be around me.  I think we can control the home environment pretty well.  Being at home and isolated to the bedroom is still better than  being in the hospital.

And the Powerball Numbers Are:
Things are looking up on the lotto front.  My white count took a decent jump today and the other counts are starting to come up on their own (without transfusions).

10/29/15 (Day +13): WBC 0.6, Hemoglobin 7.6, Platelets 31
10/30/15 (Day +14): WBC 0.7, Hemoglobin 8, Platelets 31
10/31/15 (Day +15): WBC 0.8, Hemoglobin 8.1, Platelets 36
11/01/15 (Day +16): WBC 1.3, Hemoglobin 8.5, Platelets 41

A Duck Dynasty Prayer
I want to go home.  Please let me go home.  Those are lyrics first sung many decades ago, but I find them swirling around in my head.  They describe my current feelings and pleas.  God, please let me be able to go home tomorrow.  To spend time with my family.  To hug my kids who I haven’t seen in over 3 weeks.  To cuddle with my wife and to be in a more comfortable environment.  Please remove any barriers to me being able to leave here.  I want to go home.  Please let me go home.  Thank you for another day.

16 thoughts on “So Hoist Up the John B’s Sail

  1. I heard if you put on a pair of slippers, close your eyes and keep repeating, “There’s no place like home …”, you will find yourself there when you re-open your eyes.

    Liked by 3 people

  2. Oh Rob, I so pray you get to go home tomorrow! You have been so good and brave and patient! I know you hated missing trick or treating but being able to reach out and hug the kids and touch your wife in the still of the night for comfort are things you deserve for all the rest of your days. My prayers for all of you are heaven bound! P.s. the melted snowman picture was my favorite of all that were posted that day!

    Liked by 2 people

  3. WOW! LOVE seeing those numbers jumping up! AWESOME! The costume pics are adorable! I can relate to just can’t walk anymore! Wish I could get away with that! If I laid down in the street I wouldn’t be able to GET BACK UP! LOL! Today is Monday so praying you get to go home but still remain careful there with new germs coming in! Wash hands a lot and maybe even that dreaded mask on around the kids! Make some with funny faces! Sound like a Mom? Sorry! Just an old habit!

    Liked by 2 people

  4. Rob- I loved the Hannibal picture. Tell it like it is, my friend! Hope today is a butterfly day and you don’t have to go all “Hannibal” on someone (anyone?).

    Liked by 2 people

  5. I think Frank can relate. After his stroke on 10/19 he was in the most depressing room in the hospital. It was,one of the old cramped rooms, had little natural light coming in and the same hall where Grandpa Culross died. He went to a phyical rehab hospital which was a disaster from day one. Their habits of cleanliness and germ precaution left alot to be desired. And the PT he was doing was meant for someone who had paralysis from their stroke. The other thing was that all the other patients were 25-30 years oldr then him. He begged the foc everyday to let him out. He got home last Wed.

    I know how much you miss thise kids. Who wouldn’t? They are absolutely precious. And that wife of yours is truly an angel.

    Praying you got home and all settled in. Take care, be cautious, and soak up all the love you can.

    Love you bunches kiddo
    Love, Aunt Liz

    Liked by 1 person

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